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HDC Consumer Advisory Group
The Health and Disability Commissioner's Consumer Advisory
Group (CAG) is an advisory group that provides representative
consumer advice to HDC on strategic and operational health and
Established in 2003, CAG is made up of consumer stakeholders
appointed from across the health and disability sector, who act as
a 'sounding board' for HDC's work. CAG members are selected for
their ability to highlight health and disability service consumer
concerns from their communities.
The current group includes members representing consumers from
aged care, youth, disability, Māori, Pacific People,
mental health and health sectors.
Kilian de Lacy (Aged care representative)
Throughout her career, Kilian de Lacy has held a number of roles
in the community, and across the health and disability sector. She
has worked as a registered nurse (specialising in aged care), a
radiographer, and for the Cancer Society. Kilian, who lives in
Porirua with her husband, has a track record of working with
particularly vulnerable groups of consumers, as a prison chaplain,
and through her volunteer work as a budget adviser.
Kilian brings strong links with the aged care sector to CAG, in
particular her involvement in Grey Power, a community organisation
that works to improve the lives of the elderly in New Zealand.
Sara Georgeson: Co-chairperson of CAG (Health
Sara Georgeson lived and worked for a number of years in
Palmerston North, but now lives in Wellington. She has a strong
background in social work, tertiary education and disability
support services, and more recently in policy and project
management roles. Sara has a particular interest in rights and
strategic issues. She is an experienced consumer advisor and has
strong connections in the health and disability sectors. Sara is
currently contracting with the New Zealand Disability Support
Network (NZDSN) as a policy analyst. Sara is a member of the Social
Work Registration Board (as a lay person - she has a background in
social work but has not practised for a number of years).
Latoatama ('Latoa') Halatau (Pasifika
Latoa Halatau is involved in Pacific and disability matters both
locally and regionally, as the manager of Visionary Living
Services, and as the Vice Chair of the Asia Pacific Disability
Forum (APDF) and the Co-Chair of the Pacific Disability Forum
(PDF), which has consultative status with the United Nations
Economic and Social Council. At an international level, Latoa
represents both PDF, and APDF on the International Disability
Alliance. Latoa was also part of the New Zealand disabled peoples
organisation delegation to the 2014 United Nations Convention on
the Rights of People with Disabilities (UNCRPD) Country Review into
progress on the implementation of the convention.
Following his involvement with the Ministry of Health's (MOH)
New Model project from 2011-2013, Latoa was nominated by the
Minister for Disability Issues to serve on the Enabling Good Lives
National Leadership Group. Working with MOH, the Ministry of
Education and the Ministry of Social Development, the Leadership
Group has contributed to the planning, design, implementation and
evaluation of the Enabling Good Lives demonstration in Christchurch
and Waikato. The Enabling Good Lives trial is part of New Zealand's
Disability Action Plan 2014-2018.
Frances Hartnell has worked in leadership roles across a range
of businesses where she has established and executed strategies to
define cultures, structures and systems, and built key community
partnerships. Frances is recognised for her ability to "forward
think" and for her understanding of public and private sector
Frances has worked as the Director of Manukau Pacific Markets
Ltd and been a Fulbright Scholar, studying Economic Development. In
a voluntary capacity, Frances is the director of the Kairos Oceania
Charitable Trust and member of the Selwyn College Community
Education Advisory Group. Frances is a member of Creative NZ's
Pacific Creative Arts Committee.
Fiona Pimm (Iwi representative)
Fiona Pimm holds a Postgraduate Diploma in Public Health from
the University of Otago, an MBA from Massey University, and a
Diploma in Applied Science, Nuclear Medicine from the Royal
Melbourne Institute of Technology (RMIT). She has worked in the
health sector since the early 1980s, originally as a Nuclear
Medicine Technologist, and later in health service management.
Fiona has worked in primary care & secondary care health
management roles, as well as a long period working specifically in
the Māori health sector.
Fiona has also been active in governance roles with government
and community organisations since 2000, and continues to hold
several directorships, as well as working in health management.
Pati Umaga (Disability
Pati Umaga is a Wellington-based, first-generation New
Zealand-born Samoan. During his time as a Youth Development Worker
for the Community Development Team at Lower Hutt City Council, Pati
had a fall which resulted in him using a wheelchair and becoming an
ACC long-term serious injury client. Pati used his Community
and Youth Development background to become involved within the
disability sector and in 2006 establish the Wellington Pasefika
Disability Network, a registered trust which is a voluntary support
group for Māori and Pacific people with disabilities.
Pati has had first-hand experience of poor service delivery by
disability service providers. Pati had used his experience as
a motivation to spread understanding about the work of the Health
and Disability Commissioner, and to ensure that consumers are aware
of their rights to be treated fairly and to make a complaint to the
Commissioner if they are getting sub-standard service.
Pati also has a background in music. He was the bass
player for the Holidaymakers, who had the number one hit "Sweet
Lovers" in 1987. Pati plans to use his music experience as a
way for people with disabilities to develop and express their
creative abilities in performance and recording.
Rangimarie Naida Glavish
'Naida' ONZM. JP
As Chief Advisor Tikanga and General Manager Maori Health for
Waitemata and Auckland District Health Boards, Naida leads the
organisation in managing relationships with mana whenua and iwi
Māori from a tikanga perspective and provides assistance in
managing Treaty of Waitangi risks. Naida is the author of the
Tikanga Best Practice Policy which is used nationally across many
of the DHBs and some organisations in the private sector.
Naida is also the chairperson of her tribal iwi Te Rūnanga o
Ngati Whātua and in July 2013 Naida accepted the position as
President of the Māori Party.
Ramari Maipi (Iwi representative)
Ramari Maipi was appointed the first Māori community
health worker in the Waikato region. Ramari trained under Dr Peter
Dunn at the Waahi Marae Health centre and assisted in the
development of community health screening, and on the development
of Whānau Ora.
Ramari has previously worked for the Waikato District Health
Board, where she was involved in the cervical screening research
done in the region. Since 1992, Ramari has worked for Raukura
Hauora O Tainui. Her current position focuses on Māori Women's
Health Cervical and Breast Promotion and Screening. Ramari lives in
Glen Terry (Disability representative)
Despite his young age, Glen Terry takes part in an exciting
range of disability initiatives. Based in Hamilton, Glen is an
experienced public speaker. He has spoken on the topic of
disability, as well as his own personal experiences at a number of
Waikato secondary schools, Waikato University, an Imagine Better
conference and at a People First Leadership forum. He has been a
member of People First since early 2013.
Glen is actively involved in the Waikato demonstration of
Enabling Good Lives, where he is on the Waikato leadership group,
and co-facilitated the EGL forums for disabled people. He will also
be presenting information about EGL to day services in the
An enthusiastic sportsperson, Glen participates in ten-pin
bowling, basketball and football with Special Olympics New Zealand,
and explores his love of music through performing with Star Jam.
Glen also finds time to volunteer in his community, doing
conservation with the Hamilton City Council, and gardening for a
Felicia Manase (Youth representative)
Felicia lives in Porirua where she works as the Pasifika
Disability Liaison for the Wellington region in the Special
Education department of the Ministry of Education. She is also on
the Ministry of Health's Faiva Ora National Leadership Group and
the Ministry's Disability Sector Strategic Reference Group. Felicia
has been involved with Vaka Tautua (a Think Differently project),
educating Pasifika communities about disability and special
In her spare time Felicia is a runner and was the first disabled
Pasifika athlete to complete the New York marathon.
Felicia has personal experience of health and disability
services and strong links to her local and Pasifika
Nilima Venkat MNZM JP (Asian
Nilima Venkat lives in Auckland, having migrated to New Zealand
in 1994 from India, after living in Nigeria for 20 years. Nilima is
the Project Manager and social worker for Shanti Niwas Charitable
Trust, an organisation which provides social services to elderly
and disabled people of Indian and South Asian descent.
In her work in the voluntary sector, Nilima is a founder member
and trustee of The Asian Network Inc., a Voluntary Community
Coordinator for the Office for Senior Citizens (representing
nationwide Indian and South Asian seniors), a member of the
Counties Manukau Police South East Asian advisory board, a trustee
of the Sahayata Trust (a counselling services for ethnic
communities in the Auckland region), and the President of the
Indian Women's Club.
Nilima has extensive experience and understanding of Asian
health and disability sector issues through her work, as well as
personal experience of a chronic health condition.
Victoria Roberts (Mental health
Victoria has extensive personal and professional knowledge of
the mental health sector. She is currently Chair of Nga Hau e Wha,
a mental health sector consumer advisory group which is contracted
to the Ministry of Health. She also works as an advocate for the
Benefit Rights Service in Wellington. Victoria also has strong
links to the community NGO sector in Wellington.
Victoria is recognised for her ability to work at a
national and regional level. She is a leader in the mental health
sector, able to effectively analyse issues and communicate with a
diverse range of people. In her spare time Victoria enjoys
Wellington's beaches, reads and tends to her