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HDC Consumer Advisory Group


The Health and Disability Commissioner's Consumer Advisory Group (CAG) is an advisory group that provides representative consumer advice to HDC on strategic and operational health and disability issues.

Established in 2003, CAG is made up of consumer stakeholders appointed from across the health and disability sector, who act as a 'sounding board' for HDC's work. CAG members are selected for their ability to highlight health and disability service consumer concerns from their communities.

The current group includes members representing consumers from aged care, youth, disability, Māori, Pacific People, mental health and health sectors.

 

Kilian de Lacy (Aged care representative)

Throughout her career, Kilian de Lacy has held a number of roles in the community, and across the health and disability sector. She has worked as a registered nurse (specialising in aged care), a radiographer, and for the Cancer Society. Kilian, who lives in Porirua with her husband, has a track record of working with particularly vulnerable groups of consumers, as a prison chaplain, and through her volunteer work as a budget adviser.

Kilian brings strong links with the aged care sector to CAG, in particular her involvement in Grey Power, a community organisation that works to improve the lives of the elderly in New Zealand.

Sara Georgeson: Co-chairperson of CAG (Health representative)

Sara Georgeson lived and worked for a number of years in Palmerston North, but now lives in Wellington. She has a strong background in social work, tertiary education and disability support services, and more recently in policy and project management roles. Sara has a particular interest in rights and strategic issues. She is an experienced consumer advisor and has strong connections in the health and disability sectors. Sara is currently contracting with the New Zealand Disability Support Network (NZDSN) as a policy analyst. Sara is a member of the Social Work Registration Board (as a lay person - she has a background in social work but has not practised for a number of years).

Latoatama ('Latoa') Halatau (Pasifika representative)

Latoa Halatau is involved in Pacific and disability matters both locally and regionally, as the manager of Visionary Living Services, and as the Vice Chair of the Asia Pacific Disability Forum (APDF) and the Co-Chair of the Pacific Disability Forum (PDF), which has consultative status with the United Nations Economic and Social Council. At an international level, Latoa represents both PDF, and APDF on the International Disability Alliance. Latoa was also part of the New Zealand disabled peoples organisation delegation to the 2014 United Nations Convention on the Rights of People with Disabilities (UNCRPD) Country Review into progress on the implementation of the convention.

Following his involvement with the Ministry of Health's (MOH) New Model project from 2011-2013, Latoa was nominated by the Minister for Disability Issues to serve on the Enabling Good Lives National Leadership Group. Working with MOH, the Ministry of Education and the Ministry of Social Development, the Leadership Group has contributed to the planning, design, implementation and evaluation of the Enabling Good Lives demonstration in Christchurch and Waikato. The Enabling Good Lives trial is part of New Zealand's Disability Action Plan 2014-2018.

Frances Hartnell   (Pasifika representative)

Frances Hartnell has worked in leadership roles across a range of businesses where she has established and executed strategies to define cultures, structures and systems, and built key community partnerships. Frances is recognised for her ability to "forward think" and for her understanding of public and private sector trends.

Frances has worked as the Director of Manukau Pacific Markets Ltd and been a Fulbright Scholar, studying Economic Development. In a voluntary capacity, Frances is the director of the Kairos Oceania Charitable Trust and member of the Selwyn College Community Education Advisory Group. Frances is a member of Creative NZ's Pacific Creative Arts Committee.

Fiona Pimm (Iwi representative)

Fiona Pimm holds a Postgraduate Diploma in Public Health from the University of Otago, an MBA from Massey University, and a Diploma in Applied Science, Nuclear Medicine from the Royal Melbourne Institute of Technology (RMIT). She has worked in the health sector since the early 1980s, originally as a Nuclear Medicine Technologist, and later in health service management. Fiona has worked in primary care & secondary care health management roles, as well as a long period working specifically in the Māori health sector.

Fiona has also been active in governance roles with government and community organisations since 2000, and continues to hold several directorships, as well as working in health management.

Pati Umaga (Disability representative)

Pati Umaga is a Wellington-based, first-generation New Zealand-born Samoan. During his time as a Youth Development Worker for the Community Development Team at Lower Hutt City Council, Pati had a fall which resulted in him using a wheelchair and becoming an ACC long-term serious injury client. Pati used his Community and Youth Development background to become involved within the disability sector and in 2006 establish the Wellington Pasefika Disability Network, a registered trust which is a voluntary support group for Māori and Pacific people with disabilities. 

Pati has had first-hand experience of poor service delivery by disability service providers. Pati had used his experience as a motivation to spread understanding about the work of the Health and Disability Commissioner, and to ensure that consumers are aware of their rights to be treated fairly and to make a complaint to the Commissioner if they are getting sub-standard service. 

Pati also has a background in music. He was the bass player for the Holidaymakers, who had the number one hit "Sweet Lovers" in 1987. Pati plans to use his music experience as a way for people with disabilities to develop and express their creative abilities in performance and recording. 

Rangimarie Naida Glavish 'Naida' ONZM. JP (Iwi representative)

As Chief Advisor Tikanga and General Manager Maori Health for Waitemata and Auckland District Health Boards, Naida leads the organisation in managing relationships with mana whenua and iwi Māori from a tikanga perspective and provides assistance in managing Treaty of Waitangi risks. Naida is the author of the Tikanga Best Practice Policy which is used nationally across many of the DHBs and some organisations in the private sector.

Naida is also the chairperson of her tribal iwi Te Rūnanga o Ngati Whātua and in July 2013 Naida accepted the position as President of the Māori Party.

Ramari Maipi (Iwi representative)
Ramari Maipi was appointed as one of the first Māori community health workers in New Zealand. Ramari trained under Dr Peter Dunn at the Waahi Marae Health centre and assisted in the development of community health screening, and on the development of the now 'Warrant of Fitness'.  
Ramari has previously worked for the Waikato District Health Board, where she was involved in the cervical screening research done in the region. Since 1992, Ramari has worked for Raukura Hauora O Tainui, her current position focuses on Māori Women's Health Cervical and Breast Promotion and Screening. Ramari lives in Huntly.

Ramari Maipi (Iwi representative)

Ramari Maipi was appointed the first Māori community health worker in the Waikato region. Ramari trained under Dr Peter Dunn at the Waahi Marae Health centre and assisted in the development of community health screening, and on the development of Whānau Ora.  

Ramari has previously worked for the Waikato District Health Board, where she was involved in the cervical screening research done in the region. Since 1992, Ramari has worked for Raukura Hauora O Tainui. Her current position focuses on Māori Women's Health Cervical and Breast Promotion and Screening. Ramari lives in Huntly.

Glen Terry (Disability representative)

Despite his young age, Glen Terry takes part in an exciting range of disability initiatives. Based in Hamilton, Glen is an experienced public speaker. He has spoken on the topic of disability, as well as his own personal experiences at a number of Waikato secondary schools, Waikato University, an Imagine Better conference and at a People First Leadership forum. He has been a member of People First since early 2013.

Glen is actively involved in the Waikato demonstration of Enabling Good Lives, where he is on the Waikato leadership group, and co-facilitated the EGL forums for disabled people. He will also be presenting information about EGL to day services in the Waikato.

An enthusiastic sportsperson, Glen participates in ten-pin bowling, basketball and football with Special Olympics New Zealand, and explores his love of music through performing with Star Jam. Glen also finds time to volunteer in his community, doing conservation with the Hamilton City Council, and gardening for a disability service.

Felicia Manase (Youth representative)

Felicia lives in Porirua where she works as the Pasifika Disability Liaison for the Wellington region in the Special Education department of the Ministry of Education. She is also on the Ministry of Health's Faiva Ora National Leadership Group and the Ministry's Disability Sector Strategic Reference Group. Felicia has been involved with Vaka Tautua (a Think Differently project), educating Pasifika communities about disability and special education services.

In her spare time Felicia is a runner and was the first disabled Pasifika athlete to complete the New York marathon.

Felicia has personal experience of health and disability services and strong links to her local and Pasifika communities.

Nilima Venkat MNZM JP (Asian representative)

Nilima Venkat lives in Auckland, having migrated to New Zealand in 1994 from India, after living in Nigeria for 20 years. Nilima is the Project Manager and social worker for Shanti Niwas Charitable Trust, an organisation which provides social services to elderly and disabled people of Indian and South Asian descent.

In her work in the voluntary sector, Nilima is a founder member and trustee of The Asian Network Inc., a Voluntary Community Coordinator for the Office for Senior Citizens (representing nationwide Indian and South Asian seniors), a member of the Counties Manukau Police South East Asian advisory board, a trustee of the Sahayata Trust (a counselling services for ethnic communities in the Auckland region), and the President of the Indian Women's Club.

Nilima has extensive experience and understanding of Asian health and disability sector issues through her work, as well as personal experience of a chronic health condition. 

Victoria Roberts (Mental health representative)

Victoria has extensive personal and professional knowledge of the mental health sector. She is currently Chair of Nga Hau e Wha, a mental health sector consumer advisory group which is contracted to the Ministry of Health. She also works as an advocate for the Benefit Rights Service in Wellington. Victoria also has strong links to the community NGO sector in Wellington. 

Victoria is recognised for her ability to work at a national and regional level. She is a leader in the mental health sector, able to effectively analyse issues and communicate with a diverse range of people. In her spare time Victoria enjoys Wellington's beaches, reads and tends to her garden. 

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