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Right 7(4) Consultation

Consultation on health and disability research involving adult participants who are unable to provide informed consent

The effect of Right 7(4) of the Code of Health and Disability Services Consumers' Rights (the Code) is that  non-consensual research involving adult participants cannot proceed unless it is in the best interests of the participants. Frequently the outcome from the research is uncertain so it is difficult to know whether the participants will be better off participating in the research, than they would be if not participating. However such research might provide important information of benefit to others.

In February 2017 HDC commenced a consultation regarding research with participants who are unable to give informed consent.  New Zealanders were invited to contribute and give HDC their views on whether the law relating to research involving adult consumers who are unable to give consent should be kept as it is currently or changed.  If people thought a change was needed, HDC wanted to know what people thought the change should look like. The consultation ran for over two months, ending 30 April 2017. 

Submissions are now closed.

HDC, with the assistance of an expert advisory group is currently reviewing all the submissions received. The Commissioner will then consider those submissions and decide whether to recommend any changes to the current law.

If any change to the Code is recommended, HDC would conduct further consultation on the proposed change(s).

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