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Right 7(4) Consultation
Health and disability research
involving adult participants who are unable to provide informed
HDC is commencing a consultation
regarding research with participants who are unable to give
The effect of Right 7(4) (Code of Health and Disability Services
Consumers' Rights) is that such research cannot proceed unless it
is in the best interests of the participants. Frequently the
outcome from the research is uncertain so it is difficult to know
whether the participants will be better off participating in the
research, than not participating. However such research might
provide important information of benefit to others.
The consultation will continue until 30 April
2017. Your contribution would be most welcome.
here to download the full consultation
document. (PDF, 1.2mb)
Click here to
provide your submission online.
Click here to download
the Consultation Response Form (PDF, 723kb) if
you would prefer to make your submission via hard copy. This can be
mailed to HDC, PO Box 11934, Wellington 6142.
An EASY READ version of these documents is