Consumer Advisory Group
The Health and Disability Commissioner's Consumer Advisory Group (CAG) is an advisory group that provides representative consumer advice to HDC on strategic and operational health and disability issues.
Established in 2003, CAG is made up of consumer stakeholders appointed from across the health and disability sector, who act as a "sounding board" for HDC's work. CAG members are selected for their ability to highlight health and disability service consumer concerns from their communities.
The current group includes members representing consumers from aged care, youth, disability, Māori, Pacific People, mental health, and health sectors.
Jordon Milroy (Disability Representative)
Growing up in Samoa as a Samoan-European, Jordon faced physical challenges due to his Cerebral Palsy. From his early experiences, Jordon developed a passion for advocating and awareness-raising, which led him to undertake a number of activities.
Jordon has successfully climbed eleven of the world’s tallest towers to raise awareness of disability. Following these climbs, Jordon went on to sail competitively for Samoa in the European and World Championships.
The passion to roll up his sleeves and get the job done, and to provide a fair and just society for everybody to be heard, saw Jordon define and develop a new Youth & Pacific Advocate role at the Cerebral Palsy Society of New Zealand. This role represents over 700 young people living with Cerebral Palsy. Jordon is currently studying towards a Master’s in Human Rights while working as a disability advocate.
Jordon has many connections within disability, youth and Pacific communities.
Kilian de Lacy (Aged care representative)
Throughout her career, Kilian de Lacy has held a number of roles in the community, and across the health and disability sector. She has worked as a registered nurse (specialising in aged care), a radiographer, and for the Cancer Society. Kilian, who lives in Porirua with her husband, has a track record of working with particularly vulnerable groups of consumers, as a prison chaplain, and through her volunteer work as a budget adviser.
Kilian brings strong links with the aged care sector to CAG, in particular her involvement in Grey Power, a community organisation that works to improve the lives of the elderly in New Zealand.
Latoatama ("Latoa") Halatau (Pasifika representative)
Latoa Halatau is involved in Pacific and disability matters both locally and regionally, as the manager of Visionary Living Services, and as the Vice Chair of the Asia Pacific Disability Forum (APDF) and the Co-Chair of the Pacific Disability Forum (PDF), which has consultative status with the United Nations Economic and Social Council. At an international level, Latoa represents both PDF and APDF on the International Disability Alliance. Latoa was also part of the New Zealand disabled peoples organisation delegation to the 2014 United Nations Convention on the Rights of People with Disabilities (UNCRPD) Country Review into progress on the implementation of the convention.
Following his involvement with the Ministry of Health's (MOH's) New Model project from 2011–2013, Latoa was nominated by the Minister for Disability Issues to serve on the Enabling Good Lives National Leadership Group. Working with MOH, the Ministry of Education, and the Ministry of Social Development, the Leadership Group has contributed to the planning, design, implementation, and evaluation of the Enabling Good Lives demonstration in Christchurch and Waikato. The Enabling Good Lives trial is part of New Zealand's Disability Action Plan 2014–2018.
Frances Hartnell (Pasifika representative)
Frances Hartnell has worked in leadership roles across a range of businesses where she has established and executed strategies to define cultures, structures and systems, and built key community partnerships. Frances is recognised for her ability to "forward think" and for her understanding of public and private sector trends.
Frances has worked as the Director of Manukau Pacific Markets Ltd and been a Fulbright Scholar, studying Economic Development. In a voluntary capacity, Frances is the director of the Kairos Oceania Charitable Trust and member of the Selwyn College Community Education Advisory Group. Frances is a member of Creative NZ's Pacific Creative Arts Committee.
Dame Rangimarie Naida Glavish "Naida" ONZM. JP (Iwi representative)
As Chief Advisor Tikanga Māori Health for Waitematā and Auckland District Health Boards Dame Naida leads the organisation in managing relationships with mana whenua and iwi Māori from a tikanga perspective, and provides assistance in managing Treaty of Waitangi risks.
Dame Naida is the author of the Tikanga Best Practice Policy which is used nationally across many of the DHBs and some organisations in the private sector. Dame Naida is also the chairperson of her tribal iwi Te Rūnanga o Ngati Whātua.
In the 2011 New Year Honours, Naida was appointed an Officer of the New Zealand Order of Merit (ONZM) for services to Māori and the community. In the 2018 New Year Honours, she was promoted to Dame Companion of the New Zealand Order of Merit (DNZM), also for services to Māori and the community.
Ramari Maipi (Iwi representative)
Ramari Maipi was appointed the first Māori community health worker in the Waikato region. Ramari trained under Dr Peter Dunn at the Waahi Marae Health Centre. She assisted in the development of community health screening, and on the development of Whānau Ora.
Ramari has previously worked for the Waikato District Health Board, where she was involved in the cervical screening research done in the region. Since 1992, Ramari has worked for Raukura Hauora O Tainui. Her current position focuses on Māori Women's Health, and Cervical and Breast Promotion and Screening. Ramari lives in Huntly.
Glen Terry (Disability representative)
Despite his young age, Glen Terry takes part in an exciting range of disability initiatives. Based in Hamilton, Glen is an experienced public speaker. He has spoken on the topic of disability, as well as his own personal experiences, at a number of Waikato secondary schools, Waikato University, an Imagine Better conference, and at a People First Leadership forum. He has been a member of People First since early 2013.
Glen is actively involved in the Waikato demonstration of Enabling Good Lives, where he is on the Waikato leadership group, and co-facilitated the EGL forums for disabled people. He will also be presenting information about EGL to day services in the Waikato.
An enthusiastic sportsperson, Glen participates in ten-pin bowling, basketball, and football with Special Olympics New Zealand, and explores his love of music through performing with Star Jam. Glen also finds time to volunteer in his community, doing conservation with the Hamilton City Council, and gardening for a disability service.
Nilima Venkat MNZM JP (Asian representative)
Nilima Venkat lives in Auckland, having migrated to New Zealand in 1994 from India, after living in Nigeria for 20 years. Nilima is the Project Manager and social worker for Shanti Niwas Charitable Trust, an organisation that provides social services to elderly and disabled people of Indian and South Asian descent.
In her work in the voluntary sector, Nilima is a founder member and trustee of The Asian Network Inc., a Voluntary Community Coordinator for the Office for Senior Citizens (representing nationwide Indian and South Asian seniors), a member of the Counties Manukau Police South East Asian advisory board, a trustee of the Sahayata Trust (a counselling service for ethnic communities in the Auckland region), and the President of the Indian Women's Club.
Nilima has extensive experience and understanding of Asian health and disability sector issues through her work, as well as personal experience of a chronic health condition.
Victoria Roberts (Mental health representative)
Victoria has extensive personal and professional knowledge of the mental health sector. She is currently Chair of Nga Hau e Wha, a mental health sector consumer advisory group that is contracted to the Ministry of Health. She also works as an advocate for the Benefit Rights Service in Wellington. Victoria also has strong links to the community NGO sector in Wellington.
Victoria is recognised for her ability to work at a national and regional level. She is a leader in the mental health sector, able to effectively analyse issues and communicate with a diverse range of people. In her spare time, Victoria enjoys Wellington's beaches, reads, and tends to her garden.
Karen Browne (Health representative)
Karen has worked in the health arena most of her working life — she has qualified and worked as an enrolled nurse, a cardio-pulmonary technician, a CPR and First Aid instructor, and an ambulance officer. She moved into medical administration, and currently works for the Otago Medical School in Dunedin.
Through her association with, and voluntary work for, Arthritis NZ, Karen completed advocacy training, and was selected to be a member of the Health Navigator’s Consumer Health Advisory Service panel. Through this, Karen has been the consumer member of the Hepatitis C Implementation Advisory group, and the Alliance South Long Term Conditions Network, as well as Community Pharmacy and Air Ambulance Transport co-design service groups.